Making memories for our young family as we live with Motor Neurone & Fabry's Disease

Spring may well have finally arrived

April 16th, 2018

Well is this the start of some nice weather?  If so it will go blog crazy as the Liversidge’s will be out everywhere in search of fun.

Health update – still here lol, lung capacity is static and so is my weight despite lack of appetite and the odd feed in my gastronomy tub. The bed saga continues due to the simple fact people can’t deliver what you ordered.  A visit to Sheffield mnd care centre saw me fall asleep during a survey complete with snoring, think I was a bit honest. My voice continues to hold up all be it being on its last legs.

That brings me nicely on to the Hornsea 3rd marathon put on by the Hornsea rotary club.  I was asked to open the marathon which I did by feebly lowering a union jack flag to accompany the official race starter with his air horn.  As well as starting the race I took part along side with my own Marie curie nurses, my wife Liz and a few supporters.  We had a cunning plan to avoid being last, we diverted down a green lane which suited my four wheel drive chair however not my neck, I had to wear my trusty neck brace for this bit.  I came in 1h 28mins later. The whole day was a great success raising over £4500 for Marie curie thanks to the entrance fees of over 400 runners going towards the total. I would like to complete the whole event next year if possible so watch out for more antics.

Popcorn had her first proper outing this weekend in the form of East Park, the beach was on the agenda but my four wheel drive chair had a puncture so that stopped that.  Popcorn appeared to enjoy the girls showing her round and introducing her to all manner of other dog’s even fellow beagles.

The rotary club disability games have come round again, this time in Hull at Hymers College. It was as always good fun and I had a chance to shoot again with the help of an instructor and technology, but still the trigger was pulled by me when I felt the shot was good.  Unfortunately due to elf and safety the girls weren’t allowed to take part.  I did win the electric wheelchair dash. Yes that is Lord Prescott presenting the trophy.

Just to round things off, i got out with the drone.

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