Making memories for our young family as we live with Motor Neurone & Fabry's Disease

MND awareness month

June 13th, 2018

So here I am again, made another year.  Possibly luck has a lot to do with it? Or is it my sheer determination to concur life with this illness.  I find it intriguing how everyone suffers differently, how people deal with it differently, and the pure hatred for the disease.

I have to date made some fair achievements even by my standards. I got married to the love of my life, had two amazing girls.  Been to see Mickey mouse twice, swam with Dolphins, did the longest zip wire in Europe, climbed a mountain, Abseiled from the Humber bridge and I haven’t done yet.  Every single one was done with MND.

My point – mainly for newly diagnosed as other suffers will have made their minds up, life is still worth living all you need to do is want to make it happen. I accept that my outlook isn’t for everyone and there are lots of factors affecting people’s lives. I this year have had 2 operations, sepsis and been temporally completely paralysed (normally I would be what i describe as ¾ paralysed) hell of a difference, 2 chest infections so I wouldn’t say I have had an easy ride but by no means hard.

My aims for this year are to join the mnda board of trustees and set a Guinness World Record oh and a spot of potholing.


Leave a Reply

Your email address will not be published. Required fields are marked *