MakingMemories.life
Making memories for our young family as we live with Motor Neurone & Fabry's Disease

Making Memories Blog

Hello spring, I feel the need,. the need for Speed

Well as is usually the case, you don’t see a new blog for ages and then they all come at once. So the gears of a lathe have started to turn, some of the major parts have been manufactured, these have been custom made for this project, we learnt from the previous attempt, using acquired parts from doner machines just didn’t work. the previous attempt gave us real food for thought.  so with some serious skills behind me the plan was formulated, now it goes without saying that serious skill is...

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  • April 6th, 2019
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Things in my head

Just a few things that go through my head on an average day. Does anyone with MND just sit and think there has to be more to life than this? I mean is that it, the finale, like the end of a great series with a naff ending. Seriously  like good night auvoire. I mean really sitting in the same chair every day till you die.  Despite being really active, I get these thoughts , being driven around I see people of all shapes and sizes, I think take care of the...

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Is spring here or winter ending

  Well it has been 4 months since my last post; a lot of water has gone under the bridge since then. It’s hard to believe we are now in March, roll on spring. Notably the fastest electric wheelchair world record is still on going and we hope to begin testing soon, this will hopefully coincide with some nice weather.  Regarding this although there has been little news on the project we hope March will see the coming together of all the parts in one place, various people throughout the country have...

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  • March 19th, 2019
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wombles – underground, overground

Well an update is long overdue, and maybe some inside information on my challenges that the media don’t want to say.  Well since my last blog post the weather has changed a little, enough to make me shiver all the time unless I wear ten layers and reassemble the Michelin man. I have mainly been busy promoting our 2 challenges, of which one was successful completed on Monday 1st October, now caving is not something I have never tried and to be honest it wasn’t on my bucket list. So how...

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  • October 10th, 2018
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Turkey 2018 – part 3, possibly the longest blog post ever

Day seven So the suitcase had proceeded to clearance, does that mean it will be here today asks Liz?  Unlikely as it is still in Istanbul lol, so at regular intervals the tracking was checked but no change.  The girls finally decided to try kids club, which was pretty good.  It includes a train, bumper cars, a carousel and water slide as well as craft, and pizza making.  This would come in handy. The evening entertainment was as a rule very good with dance acts, magicians and even bicycle stunts....

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Turkey holiday diary 2018 – Part Two

So the holiday continues. Day three We woke to the fact that the suitcase was on hold, this clearly didn’t go down well with Liz, and she was well restrained to be fair.  First breakfast then down to the pool complete with hoist, inflatable crocodile, rubber ring and Jet Ski.  Once installed Thelma and I embarked on what ended up being a two hour lift ride.  We went to see our new friends at guest relations to get them to ring DHL, (dump, hide, lose) to find out the problem?  We needed...

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Turkey holiday diary 2018 – Part one

As title suggests I have decided to do this post in diary form, but before I start a little introduction. The two weekends previous we were away, the first was at fully charged at Silverstone and the second we went to a concert at the O2 in London, pre booked before the holiday.  Health wise I was not eating due to lack of appetite and been tube feed but drinking. Day one We were 1.5 hrs late setting off as you do if you’re the Liversidge’s, so of course there was then an...

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  • July 4th, 2018
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MND awareness month

So here I am again, made another year.  Possibly luck has a lot to do with it? Or is it my sheer determination to concur life with this illness.  I find it intriguing how everyone suffers differently, how people deal with it differently, and the pure hatred for the disease. I have to date made some fair achievements even by my standards. I got married to the love of my life, had two amazing girls.  Been to see Mickey mouse twice, swam with Dolphins, did the longest zip wire in Europe,...

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I’m standing, well sitting really.

Well what a few weeks it’s been, in a nut shell – centre parcs, Beverley Westwood, nominated for trustee with MNDA, getting stuck in promoting the fastest electric wheelchair world record, followed by an exciting few weeks. Firstly  our yearly trip to centre parcs at Sherwood Forest and this time we took our 4 legged friend Popcorn, this worked quite well and wasn’t as bad as we thought it might given she is a puppy.  The girls as always loved the swimming activities while dad got jealous of all the fun;...

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It’s Time

Finally we have nice weather, or am I dreaming lol.  BBQ’s are here and maybe it’s Pimms o’clock. I have decided to do a little test, to see if people actually read all my blog post, so keep reading.  Since my last blog believe it or not we haven’t done that much although we have covered some miles.  Last weekend saw our regional mnda conference which wasn’t so regional as it was in Kendal.  The most exciting part for me is the research part, gives an insight into new possibilities. I...

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