MakingMemories.life
Making memories for our young family as we live with Motor Neurone & Fabry's Disease

Making Memories Blog

Turkey 2018 – part 3, possibly the longest blog post ever

Day seven So the suitcase had proceeded to clearance, does that mean it will be here today asks Liz?  Unlikely as it is still in Istanbul lol, so at regular intervals the tracking was checked but no change.  The girls finally decided to try kids club, which was pretty good.  It includes a train, bumper cars, a carousel and water slide as well as craft, and pizza making.  This would come in handy. The evening entertainment was as a rule very good with dance acts, magicians and even bicycle stunts....

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Turkey holiday diary 2018 – Part Two

So the holiday continues. Day three We woke to the fact that the suitcase was on hold, this clearly didn’t go down well with Liz, and she was well restrained to be fair.  First breakfast then down to the pool complete with hoist, inflatable crocodile, rubber ring and Jet Ski.  Once installed Thelma and I embarked on what ended up being a two hour lift ride.  We went to see our new friends at guest relations to get them to ring DHL, (dump, hide, lose) to find out the problem?  We needed...

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Turkey holiday diary 2018 – Part one

As title suggests I have decided to do this post in diary form, but before I start a little introduction. The two weekends previous we were away, the first was at fully charged at Silverstone and the second we went to a concert at the O2 in London, pre booked before the holiday.  Health wise I was not eating due to lack of appetite and been tube feed but drinking. Day one We were 1.5 hrs late setting off as you do if you’re the Liversidge’s, so of course there was then an...

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  • July 4th, 2018
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MND awareness month

So here I am again, made another year.  Possibly luck has a lot to do with it? Or is it my sheer determination to concur life with this illness.  I find it intriguing how everyone suffers differently, how people deal with it differently, and the pure hatred for the disease. I have to date made some fair achievements even by my standards. I got married to the love of my life, had two amazing girls.  Been to see Mickey mouse twice, swam with Dolphins, did the longest zip wire in Europe,...

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I’m standing, well sitting really.

Well what a few weeks it’s been, in a nut shell – centre parcs, Beverley Westwood, nominated for trustee with MNDA, getting stuck in promoting the fastest electric wheelchair world record, followed by an exciting few weeks. Firstly  our yearly trip to centre parcs at Sherwood Forest and this time we took our 4 legged friend Popcorn, this worked quite well and wasn’t as bad as we thought it might given she is a puppy.  The girls as always loved the swimming activities while dad got jealous of all the fun;...

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It’s Time

Finally we have nice weather, or am I dreaming lol.  BBQ’s are here and maybe it’s Pimms o’clock. I have decided to do a little test, to see if people actually read all my blog post, so keep reading.  Since my last blog believe it or not we haven’t done that much although we have covered some miles.  Last weekend saw our regional mnda conference which wasn’t so regional as it was in Kendal.  The most exciting part for me is the research part, gives an insight into new possibilities. I...

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Spring may well have finally arrived

Well is this the start of some nice weather?  If so it will go blog crazy as the Liversidge’s will be out everywhere in search of fun. Health update – still here lol, lung capacity is static and so is my weight despite lack of appetite and the odd feed in my gastronomy tub. The bed saga continues due to the simple fact people can’t deliver what you ordered.  A visit to Sheffield mnd care centre saw me fall asleep during a survey complete with snoring, think I was a bit...

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  • April 16th, 2018
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You couldn’t write this stuff.

So welcome to our new website.  Hopefully you will find it much easier and more mobile friendly.  Please feel free to comment on your thoughts and suggestions.  Our new site has been created and built by Grant Hood who is the husband of one of my carers; he has done it for a few Sunday dinners and drone flying.  We can’t thank you enough for giving up your free time to help us. My previous post mentioned an operation well we got there in the end is all I can say. After...

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  • March 24th, 2018
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Operations and Puppies

So a fairly quick post to say I’m off to hospital again, this time for a portacast, a small device near my shoulder so they can get a line into my veins as they are rather poor to say the least.  It will also make my fortnightly infusion a lot easier. That wasn’t my reason for this post through.  In my last post I mentioned Poppy getting a puppy and I asked you all to hold that thought.  Well here are my thoughts behind why I pushed for it, right or...

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  • March 12th, 2018
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Mini series and the unexpected

Well what an interesting few weeks, just a quick note to say that it has been brought to my attention that our website is less than mobile friendly. So as a result we are in the process of redesigning the site and any ideas are more than welcome. The main news is the release of the video series of our trip to the Bendrigg trust courtesy of the Masonic charitable foundation. The video series explains how and why we went. Recently I had an unexpected trip to hospital. I was completely unaware...

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