MakingMemories.life
Making memories for our young family as we live with Motor Neurone & Fabry's Disease

Making Memories Blog

MND awareness month

So here I am again, made another year.  Possibly luck has a lot to do with it? Or is it my sheer determination to concur life with this illness.  I find it intriguing how everyone suffers differently, how people deal with it differently, and the pure hatred for the disease. I have to date made some fair achievements even by my standards. I got married to the love of my life, had two amazing girls.  Been to see Mickey mouse twice, swam with Dolphins, did the longest zip wire in Europe,...

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I’m standing, well sitting really.

Well what a few weeks it’s been, in a nut shell – centre parcs, Beverley Westwood, nominated for trustee with MNDA, getting stuck in promoting the fastest electric wheelchair world record, followed by an exciting few weeks. Firstly  our yearly trip to centre parcs at Sherwood Forest and this time we took our 4 legged friend Popcorn, this worked quite well and wasn’t as bad as we thought it might given she is a puppy.  The girls as always loved the swimming activities while dad got jealous of all the fun;...

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It’s Time

Finally we have nice weather, or am I dreaming lol.  BBQ’s are here and maybe it’s Pimms o’clock. I have decided to do a little test, to see if people actually read all my blog post, so keep reading.  Since my last blog believe it or not we haven’t done that much although we have covered some miles.  Last weekend saw our regional mnda conference which wasn’t so regional as it was in Kendal.  The most exciting part for me is the research part, gives an insight into new possibilities. I...

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Spring may well have finally arrived

Well is this the start of some nice weather?  If so it will go blog crazy as the Liversidge’s will be out everywhere in search of fun. Health update – still here lol, lung capacity is static and so is my weight despite lack of appetite and the odd feed in my gastronomy tub. The bed saga continues due to the simple fact people can’t deliver what you ordered.  A visit to Sheffield mnd care centre saw me fall asleep during a survey complete with snoring, think I was a bit...

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  • April 16th, 2018
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You couldn’t write this stuff.

So welcome to our new website.  Hopefully you will find it much easier and more mobile friendly.  Please feel free to comment on your thoughts and suggestions.  Our new site has been created and built by Grant Hood who is the husband of one of my carers; he has done it for a few Sunday dinners and drone flying.  We can’t thank you enough for giving up your free time to help us. My previous post mentioned an operation well we got there in the end is all I can say. After...

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  • March 24th, 2018
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Operations and Puppies

So a fairly quick post to say I’m off to hospital again, this time for a portacast, a small device near my shoulder so they can get a line into my veins as they are rather poor to say the least.  It will also make my fortnightly infusion a lot easier. That wasn’t my reason for this post through.  In my last post I mentioned Poppy getting a puppy and I asked you all to hold that thought.  Well here are my thoughts behind why I pushed for it, right or...

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  • March 12th, 2018
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Mini series and the unexpected

Well what an interesting few weeks, just a quick note to say that it has been brought to my attention that our website is less than mobile friendly. So as a result we are in the process of redesigning the site and any ideas are more than welcome. The main news is the release of the video series of our trip to the Bendrigg trust courtesy of the Masonic charitable foundation. The video series explains how and why we went. Recently I had an unexpected trip to hospital. I was completely unaware...

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Past, future and present

So my second attempt at this post, reason – I am so busy I do it in bits, forgot to save it and windows rebooted, #epic failure. So here goes! Exciting times have been and are coming. What have we been up to? Getting on the news twice in one week. Firstly the premier Inn saga, this for us cast a big shadow over our invitation to meet Princess Anne. The premier Inn situation is ongoing and in true style my wife has the bull by the horns and isn’t letting...

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  • February 5th, 2018
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New year, new hopes and dreams. Oh and challenges

It’s been a while since my last blog post.  Unfortunately there isn’t any amazing challenges or videos to report. Instead the news is more about the challenges of living with motor neurone disease.  Thankfully in the last 6 months my condition appears to have remained fairly static, even minor improvement in kidney function and night time breathing.  I would like to say this is due to medical advice, however given I drink excessive amounts of energy drink and refuse my ventilation machine on a night, I have to say currently my...

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  • January 22nd, 2018
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Politics and Flying high

It has been a while, as normal we have been super busy. In fact to be honest I don’t have a clue where to start. Since mount Snowdon we have done several separate photo shoots with Marie curie, one was for their latest campaign and is featured below. While filming Snowdon I also did some separate filming for a story video which is due for release anytime now. A couple of weeks ago we were photographed as a family for their annual daffodil appeal early next year. Filming and photographs...

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  • November 26th, 2017
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