MakingMemories.life
Making memories for our young family as we live with Motor Neurone & Fabry's Disease

Making Memories Blog

Spring may well have finally arrived

Well is this the start of some nice weather?  If so it will go blog crazy as the Liversidge’s will be out everywhere in search of fun. Health update – still here lol, lung capacity is static and so is my weight despite lack of appetite and the odd feed in my gastronomy tub. The bed saga continues due to the simple fact people can’t deliver what you ordered.  A visit to Sheffield mnd care centre saw me fall asleep during a survey complete with snoring, think I was a bit...

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  • April 16th, 2018
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You couldn’t write this stuff.

So welcome to our new website.  Hopefully you will find it much easier and more mobile friendly.  Please feel free to comment on your thoughts and suggestions.  Our new site has been created and built by Grant Hood who is the husband of one of my carers; he has done it for a few Sunday dinners and drone flying.  We can’t thank you enough for giving up your free time to help us. My previous post mentioned an operation well we got there in the end is all I can say. After...

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  • March 24th, 2018
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Operations and Puppies

So a fairly quick post to say I’m off to hospital again, this time for a portacast, a small device near my shoulder so they can get a line into my veins as they are rather poor to say the least.  It will also make my fortnightly infusion a lot easier. That wasn’t my reason for this post through.  In my last post I mentioned Poppy getting a puppy and I asked you all to hold that thought.  Well here are my thoughts behind why I pushed for it, right or...

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  • March 12th, 2018
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Mini series and the unexpected

Well what an interesting few weeks, just a quick note to say that it has been brought to my attention that our website is less than mobile friendly. So as a result we are in the process of redesigning the site and any ideas are more than welcome. The main news is the release of the video series of our trip to the Bendrigg trust courtesy of the Masonic charitable foundation. The video series explains how and why we went. Recently I had an unexpected trip to hospital. I was completely unaware...

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Past, future and present

So my second attempt at this post, reason – I am so busy I do it in bits, forgot to save it and windows rebooted, #epic failure. So here goes! Exciting times have been and are coming. What have we been up to? Getting on the news twice in one week. Firstly the premier Inn saga, this for us cast a big shadow over our invitation to meet Princess Anne. The premier Inn situation is ongoing and in true style my wife has the bull by the horns and isn’t letting...

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  • February 5th, 2018
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New year, new hopes and dreams. Oh and challenges

It’s been a while since my last blog post.  Unfortunately there isn’t any amazing challenges or videos to report. Instead the news is more about the challenges of living with motor neurone disease.  Thankfully in the last 6 months my condition appears to have remained fairly static, even minor improvement in kidney function and night time breathing.  I would like to say this is due to medical advice, however given I drink excessive amounts of energy drink and refuse my ventilation machine on a night, I have to say currently my...

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  • January 22nd, 2018
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Politics and Flying high

It has been a while, as normal we have been super busy. In fact to be honest I don’t have a clue where to start. Since mount Snowdon we have done several separate photo shoots with Marie curie, one was for their latest campaign and is featured below. While filming Snowdon I also did some separate filming for a story video which is due for release anytime now. A couple of weeks ago we were photographed as a family for their annual daffodil appeal early next year. Filming and photographs...

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  • November 26th, 2017
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Cohl’s second poem, just as great as the first

The Abseil There was the sense of anticipation, in the air that day, as they all waited, with, raised eyes, under the Humber Bridge, in the wind they stood, beneath the cold autumnal skies. Gulls in their numbers, swirled over their heads, silhouetted again the pale skyline, as they watched from above, this unusual event, that would soon make the news headlines. Suddenly, there were, gasps from the crowd, as Spider Man came into view, over the side of the bridge he appeared, dressed in his costume of red and blue. The wind tugged at the wires, as he began his descent, accompanied by...

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  • September 19th, 2017
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It’s been a month of highs

Well what a few weeks it’s been! Abseiling, raising loads of money for charity and making choices about my future. First a brief summary of the abseil, I don’t see a need to dwell on it to long as the media did a good job of covering it. Look North did a great piece thanks to Jo Makel and it’s in our video section as well as at the bottom of this post. To sum it up it was a fantastic experience for both Liz and I, it was a little...

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  • September 16th, 2017
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It’s blog post time

It’s blog post time again I now have an appointment with ENT with regards to my trachy, quite quick, in September.  I have compiled a list of questions, I a few might be a bit silly, a teacher once told me providing its relevant there isn’t such a silly question.  I kind of figure as it will be the next part of my MND journey I need to be prepared. It’s now less than 2 weeks to the abseil, Liz as ever is working hard to make it a success financially.  She...

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  • August 29th, 2017
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