MakingMemories.life
Making memories for our young family as we live with Motor Neurone & Fabry's Disease

Making Memories Blog

Yorkshire Dales

Time flies when you’re having fun, which is exactly what we are doing.  Mnd doesn’t stop us at all, that includes going camping. We went back to the Yorkshire dales for our wedding anniversary.  Camping is something we used to do a lot, before the girls came along and indeed something the girls now love, nature is something they are fascinated with.  We visited Tan Hill, the highest pub in England. It still has the same landlady who was there when we got married there with a sheep called Clorisser as a...

Read the full article
  • August 18th, 2017
  • Posted in Blog
  • No Comments

What’s next?

Well after Mt Snowdon you would think some rest might be in order, errr no.  Planning for the Humberbridge abseil is well on the way for 10thSeptember. Meanwhile my health continues to deteriorate at a slow pace, of which I am grateful for as it gives me time to plan for the future, whether it is an adventure, trip away or even the next step in keeping me alive in the way of a tracheostomy. My breathing has got worse at night, I use a none evasive ventilator for around two...

Read the full article
  • August 11th, 2017
  • Posted in Blog
  • No Comments

Planning for the future

Yesterday we spoke to consultants regarding an elected tracheotomy, not the easiest conversation i’ll be honest. All seem to be up for it, and now agreeing a what stage it can be done can begin. nothing planned soon though. Rather daunting but we feel we’d prefer to tackle this head on. Plenty more memories to be made. Read the full article
  • July 28th, 2017
  • Posted in Blog
  • No Comments

Mount Snowdon

It’s been a while since my last post but in my defence I have been a little tied up.  So since my last post I have mainly been climbing mountains as you may have heard !!! Climbing mountains is what this post is all about. Most of you will have seen us in the media recently and so why bother reading more of the same?  Well just to point out that the blog gives me a great way of speaking my thoughts, which most of you will have realised is rather hard...

Read the full article

The Official Mt. Snowdon training video

Please donate here: https://www.gofundme.com/Mount-Snowdon-in-a-wheelchair Read the full article

Look North interview pre Mount Snowdon

Read the full article

Latest challenge

On the 18th July 2017, Jason will be attempting to climb Mount Snowdon in an all terrain wheelchair for charity. Mount Snowdon is the highest mountain in Wales at 1,085 metres (3,560 ft) above sea level, and the highest point in the British Isles south of the Scottish Highlands. Sir Edmund Hillary trained on Mount Snowdon, prior to his 1953 ascent of Mount Everest. This would be a challenge for most able bodied people, but Jason has Motor Neurone Disease (MND) and is now virtually paralysed and confined to a wheelchair.  MND is a fatal, often rapidly progressive illness that affects 5,000 people in...

Read the full article

Holderness Gazette

Bionic man Jason tries out robotic legs By Gina Hobbs FATHER’S Day on Sunday (June 18) will be all the sweeter for 41-year-old Jason Liversidge from Rise near Skirlaugh. The go-ahead dad who has Motor Neurone Disease (MND) has walked for the first time in two years thanks to sampling special robotic legs. Jason who was diagnosed with MND in August 2013 is believed to be the first person with Motor Neurone Disease to try out the robotic legs at a specialist centre in Northampton, which is one of the UK’s leading providers...

Read the full article
  • June 15th, 2017
  • Posted in Blog
  • No Comments

Rex bionic legs

For those of you who read my previous post you will have noticed I said I would walk soon, indeed I did. Through my physiotherapist Tom Mcgregor of Physio Function and his boss Jon Graham, they made it possible for me to have a go in the Rex Bionics Rex suit. The video tells the whole story but walking again was totally amazing however just been able to stand again was just as rewarding.  although  this was a short walk my back and hips felt it the next day.  The suit...

Read the full article
  • June 8th, 2017
  • Posted in Blog
  • No Comments

MND awareness month

OK so this month is MND awareness month, so if you didn’t know, you do now.  You might expect it to be awareness day every day in our house, but it isn’t.  Back in 2013 when I was diagnosed, sure as eggs are eggs devastation hit our lives, right now writing this I think how lucky I am that it wasn’t me or somebody I knew caught up in the horrible terror attacks of any recent times or simply any. After the shock of it all and coming to terms with...

Read the full article
  • June 5th, 2017
  • Posted in Blog
  • No Comments