Making Memories Blog
So here we are, back it would seem by public demand. I was tagged in a post that was asking if Simon Adams and I were okay as we hadn’t been posting in a while.
So what have I been up to? Well regarding facebook I have commented on a few posts but mainly reading other posts and taking onboard others comments. It surprises me how many people join the MND forums and the first thing they need help with knowing what to do at the diagnosis stage, obviously I don’t... Read the full article
Just a few things that go through my head on an average day.
Does anyone with MND just sit and think there has to be more to life than this? I mean is that it, the finale, like the end of a great series with a naff ending. Seriously like good night auvoire.
I mean really sitting in the same chair every day till you die. Despite being really active, I get these thoughts , being driven around I see people of all shapes and sizes, I think take care of the... Read the full article
So the suitcase had proceeded to clearance, does that mean it will be here today asks Liz? Unlikely as it is still in Istanbul lol, so at regular intervals the tracking was checked but no change. The girls finally decided to try kids club, which was pretty good. It includes a train, bumper cars, a carousel and water slide as well as craft, and pizza making. This would come in handy. The evening entertainment was as a rule very good with dance acts, magicians and even bicycle stunts.... Read the full article
So the holiday continues.
We woke to the fact that the suitcase was on hold, this clearly didn’t go down well with Liz, and she was well restrained to be fair. First breakfast then down to the pool complete with hoist, inflatable crocodile, rubber ring and Jet Ski. Once installed Thelma and I embarked on what ended up being a two hour lift ride. We went to see our new friends at guest relations to get them to ring DHL, (dump, hide, lose) to find out the problem? We needed... Read the full article
So here I am again, made another year. Possibly luck has a lot to do with it? Or is it my sheer determination to concur life with this illness. I find it intriguing how everyone suffers differently, how people deal with it differently, and the pure hatred for the disease.
I have to date made some fair achievements even by my standards. I got married to the love of my life, had two amazing girls. Been to see Mickey mouse twice, swam with Dolphins, did the longest zip wire in Europe,... Read the full article
Well what a few weeks it’s been, in a nut shell – centre parcs, Beverley Westwood, nominated for trustee with MNDA, getting stuck in promoting the fastest electric wheelchair world record, followed by an exciting few weeks.
Firstly our yearly trip to centre parcs at Sherwood Forest and this time we took our 4 legged friend Popcorn, this worked quite well and wasn’t as bad as we thought it might given she is a puppy. The girls as always loved the swimming activities while dad got jealous of all the fun;... Read the full article
Finally we have nice weather, or am I dreaming lol. BBQ’s are here and maybe it’s Pimms o’clock.
I have decided to do a little test, to see if people actually read all my blog post, so keep reading. Since my last blog believe it or not we haven’t done that much although we have covered some miles. Last weekend saw our regional mnda conference which wasn’t so regional as it was in Kendal. The most exciting part for me is the research part, gives an insight into new possibilities. I... Read the full article
Jason, Liz, Lilly and Poppy are the Liversidge Family.
Jason is terminally ill with both Motor Neurone and Fabry’s Disease. Lilly and Poppy also have Fabry’s disease.
This website is here so that Jason and his family can share both the good times and the bad, in a frank and honest way. Follow them on their journey and be a part of Jason’s mission to leave something behind so that his children will never forget him.
The rules are simple – treat each day as if were your last. Live, love & laugh,... Read the full article